Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Recovery can be a long frustrating road. Its full of ups and downs with a good setback thrown in every once in a while just when you think things are finally ok. Thats all the normal part of getting well. It will take a long time and yes, there will be many tears thru this whole battle. Recovery for many can take every bit of 2 years. Most of us were doing significantly better at 6 months post rads and even better at the one year mark.
Sounds like your eating is coming along. Thats excellent! Its very difficult to relearn how to eat properly again. You have done great with only losing 13 pounds in all. Be very careful with your nutrition and hydration. For at least the first full year after rads you will need to still take in at least 2500 calories and 48 oz of water every day. Your body has been thru alot and needs the extra fuel to rebuild itself. If you can get 3000 calories in thats even better. The better you do with nutrition and hydration, the better you will feel.
Hang in there, things really will improve. Before you know it you will be almost back to normal.
PS... Its ok to cry, everyone does at some time during this journey. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |