Hi Sandra,

I certainly did not have my PEG as long as you have. However, I agree that redness and granulation would not cause the nausea but attention should be paid to that as well. Obviously, cleaning and flushing regularly are in order. During my time with the "alien", I had redness often which is a sign of irritation and infection. After cleaning with hydrogen peroxide, a smear of anti-bacterial gel on a q tip around the tube where the redness was solved the problem.

I got my PEG 2 hours after ringing the bell. I used it exclusively for 4 weeks after treatment. I drank water by mouth to keep my swallow going. I experienced the same thing when it finally came to eating food. Part of the reason, IMO, was that my stomach wasn't used to anything solid and had shrunk. My first solid food was one soft scrambled egg. I felt as if I had gorged at a Chinese buffet! Nausea was common up until a couple of months ago and occasionally I still get a bout even though my PEG is gone and I've been eating just about everything since Memorial Day weekend.

To quell the nausea during the transition to solids, I took my anti-nausea drug prior to feeding before I had any symptoms and used a really slow drip from the gravity bag.

Regardless, I would make a point to bring it up with your doctors. I stay in touch with my team via email and they're all great at responding to any questions (Johns Hopkins has a dedicated patient message/interface that posts appointments, messages, test results etc.) .

"T"