OP Senior Member (100+ posts) Joined: Aug 2013 Posts: 144 | I am a roller coaster enthusiast who is wondering if after I have my neck dissection whether or not I will be able to still ride the rough ones. My husband and I are taking a short vacation to Disneyland. I hope it is not my last roller coaster ride.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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