I just found this site today and sure wish I had known about it last year. It's been a rough and crazy journey to this point and I know it's not over yet. I found this site when goggling about granulating tissue around my PEG tube. I'm a little over a year out from my surgery and still having quite a few problems. I could use some helpful information on quite a few things and hope to find that here.

Thanks

Sandra
5/15/12 Diagnosed with SSC
6/20/12 Surgery-Hard/soft palate with RND, trach and PEG, teeth taken, Age 51
8/20/12 PET scan showed cancer had reoccurred
9/4/12 Began Chemo and Radiation
1X cisplatin 2X carboplatin 35 radiation
5/28/13 Latest scans---Cancer free
12/2013 Still Cancer Free MO wants no more CT scans
(not sure how I feel about that)

Blessed and Very Much So