 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Danbert,
I'm sure you are stunned from hearing those dreaded words. Be calm and figure out what you have before you rush into anything. There are literally a million possibilities but truthfully your options won't be known until more workup is done. Stay away from the Internet if at all possible as fear of the unknown may take you to dark places you don't need to go to. As you learn more from the doctors you will have some time to seek out a second opinion and help facilitate the development of a comprehensive plan to beat the beast. Hang in there, this is one of the roughest of times, I'm sure.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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