Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Being a caregiver is not an easy job at all. You must be an advocate for your husband, his nurse and still manage the household while keeping a smile on your face no matter what you feel on the inside. Its not a job I think I could easily handle. During your husbands treatments, please dont forget to be kind to yourself. Take a break and go out for lunch with some friends, take a walk or just take a long hot shower to relax and clear your head.
Make certain the doctors keep your husbands pain managed. Being in pain is nto helpful to the patient at all. It makes everything so much harder to deal with. Many OC patients (myself included) have used the fentanyl patch. Its the strongest pain med on the market. If he goes on the patch make sure you follow directions exactly and get some type of pain meds for him in case he has breakthru pain. Nobody should have to hurt while dealing with all of this!
Best wishes!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |