Hi everyone, my name is Saskia and my husband Ron was diagnosed with oral cancer last year early Spring. He had an 8 hour surgery done, after that 35 radiation treatments, then up to heal. In January this year, his stomach tube could finally be removed. He did complain about a swelling that was hurting him. Doctors said...just massage it, it will go away. It did not and after loosing 10 kg because he couldn't eat, and taken into hospital because of dehydration, they finally looked at it and peg went back in. The cancer was come back and now it was a huge tumor. 3 treatments...no improvement. Between all this, the new stomach peg was leaking severe, no food would stay in. I feed my husband with syringes, as he got muscle pain (he's weak) so at one point I was feeding him every two hours, so it wouldn't leak too much. Lucky it healed and leaking is over now. Last Monday the doctor told us chemo is not working as the cancer is invasive and agressive. (my husband has one big and one smaller pimple in his neck, that is also cancer)
Now we're waiting for a meeting as our doctor doesn't know what to do next, so he need to talk with another doctor. I just called to know what is going on. Also wanted to know my husbands stage. Assistant couldn't tell me and will call me back after the weekend.
So far our story in short version.
ps...my english could contain some mistakes as it is not my first language. I'm from Holland, live with my canadian hubby in Canada since 2002.