I can imagine what's going on! It will get clearer, calmer as time goes on. It's a marathon, not a sprint, and many will fall out of the race as time goes on. Each scan is superior for certain aspects, after certain treatments, and depends what they want to look at. Amongst its many uses a CT is good to show bone,involvement, MRI for blood vessel, nerve involvement, and PET/CT, they have in combination now, is very accurate, and good for any nodal involvement, even as small as 5mm, and distant metastases, which is uncommon at 5% at presentation. I had all three diagnostic scans, different times, but PET/CT is often preferred, and they can do more than one type of scan to assist in clinical diagnosis, staging. When I had a swollen lymph node when cancer was suspected, I had a CT scan first, the cheapest, most easily read, and widely used diagnostic scan, then had a FNAB, which confirmed metatastic cancer, then a PET/CT, which showed the primary, other areas of involvement, and then a triple scope under anesthesia with direct biopsy, to prove the primary, and other involvement elsewhere in the aerodigestive tract.

Getting back to the storm, I don't know how you want to disseminate information or how much to restrict. Some patients may want to designate a person to channel this information, some create blogs where family and friends can read it from, some may not want any information given out, some direct duties to others such as transportation, cooking, cleaning, etc. I think medical research is best done by your doctors, not hearsay, family, internet, and by reading the information supplied on OCF. There is no right or wrong answer. This wasn't problem for me, and do everything by myself lol, which is hard to do, and would say having help is better. Good luck.