Sorry to hear about your confirmed diagnosis. It will be just as confusing from now until treatment, which treatment depends on the TNM grading, tumor, nodes, metstateses, and also tumor thickness. For T-1, T-2 with N0, meaning no nodal involvement, it's surgery of radiation as the first line of treatment. You may or should have a PET/CT, if not already done, which will see if any other areas are involved.

You can, and should start keeping your own file of every test, procedure done. It's useful for information, will save money to get now, and need for other doctors. Even in the same facility, they may not automatically send tests reports to other dictors, and if you go elsewhere for consultation they would need them too. Right now you can get the surgical, and pathology report. Not sure if you had CT scan done, but you can get the report, and disc copy too.

You will me sent to see the ENT, Radiation Oncologist, and possibly others in the multidisciplinary team, at a CCC, as Cheyrl mentioned, if you go to one, and is recommended you do.

Good luck. If you have any questions, ask your doctors, and further information here. You can familiarize yourself with the many terms, treatments with oral, oropharyngeal cancer here at the opening page.

Good luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs