C,

I must admit, your level of patience and persistance go well beyond what I had and I thought I waited way too long. You surely have reason for concern based on all that you describe. As a general rule, if you are not satisfied with the results of any doctor or any exam, it behooves you to find the right medical practitioner that can address what you want addressed and in the manner you expect. Clearly, this is not being done and should signal to you to do something different. You have pounded you head on the proverbial brick wall and although the blood is dripping down your face and covering your eyes, you are managing to find the brick wall even in the dark. Let your forehead heal, my friend, so you can sleep better at night. If your problem is not cancer, your worry, clenching your teeth, anxiety, etc., are certainly compounding your problems.

Take the wakeup call, throw away the cigarettes, find a qualified ENT/Otolaryngologist that has actual experience with oral cancer and find out for certain if you have cancer. Your wheels are spinning and you are not gaining in the process and most likely frustrating your doctors, dentists, along with yourself. I am surely hoping for a definite diagnosis of cancer free and a concrete plan to attack the pain issues and dental issues. I can tell you aren't relaxed and until you can get more positive reinforcement, you will not be relaxed. Get after it!

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023