Hi Kerri,

Thanks for catching that! I corrected it. It still was a few months from Dx to Tx as I ended up seeking a 2nd opinion at Johns Hopkins and deciding to seek treatment there (no brainer!) as opposed to locally.

But yes, I started locally (Winchester Medical VA). PET was done Dec. 2012 and the cancer was local in my neck only. I had my 1st tonsillectomy/biopsy done Dec 2012. Was very uneasy with the doctors and lack of organization at Winchester and went to JH. They were 180* different in their assessment and did the selective neck dissection first to remove what was a very aggressive cancer. They also took my lingual tonsils and biopsies to try and find the primary. We never did find the primary. I was treated on the assumption it was oropharyngeal cancer and hit pretty hard all around to cover the bases.

I truly understand what you're saying about recurrence. That's my main concern having had the PET a full three months prior to treatment. I'll be getting my 1st post Tx scan in Sept/Oct.

Best wishes, positive thoughts and prayers on your upcoming scan! Here's to meeting NED again!

"T"


57
Cardiac bypass 11/07
Cardiac stents 10/2012
Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+
Palatine Tonsillectomy/Biopsies 12-21-12
Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13
Emergency Surgery/Bleeding 2/18/13
3/13/2013 30rads/6chemo
Finished Tx 4/24/13
NED Since