Thank you all for your responses. You are a VERY knowledgable group!! Karenng, your comments about
getting checked for EB is interesting. I didn't realize there was a blood test. It is not commonly tested here in the US. Also, Brian, I will check out the resources here on HPV.

I agree with those of you who wrote that focusing on how you live with cancer is important to good health and thriving. Don't get me wrong, I am committed to living. I am very grateful to God to still be here and appreciative of all the hard work healthcare professionals around the world working to help save our lives. The doctors and nurses who took care of me were tremendous.

It is the engineer in me that wants to understand why. It is not idle curiosity or wanting to change things for me personally. I hope, at the very least, I can help my children understand and perhaps one day avoid this disease. Knowing a genetic cause for my case, has direct impacts on my children which could point to clues for a potential cure and/or prevention. Right now, I just can't accept it was dumb, bad luck.


Thank you again for your replies and making me feel welcomed in this forum.