Ok we are 2 weeks out of tx. Had to have fdg tube because of 50lb loss. Had scope done at our 2wk check this past week. They said he had a lot of radiation damage and inflammation still- obviously to be expected.- he is able to take thin liquids by mouth but has not been able to take anything else. They had told him to try things like mashed potatoes, things a little thicker... But he has not. I'm so worried if he doesn't start taking things by mouth,that he is allowing the normal formation of scarring/ stricture to occur.seems like I am seeing a lot of this early in people's lives and want to help him avoid it.. Thoughts?


Colleen
Wife/advocate for husband. 52 yo nonsmoker
ISSC tonsil stage IVa. HPV + Enlarged node & tonsil,
CT 2/13
Bx lt tonsil 3/8,
PET 3/16
Tx started 4/9/2013 Cisplatin x3 and IMRT x 7 wk
Tx end 5/29
GT 5/24-7/17
Officially in Recovery Phase! : )
CT scan 8/13-NED !
CT scan 7/14-NED
5/2018- 5 year anniversary -NED