Hi Meli,

While I didn;t have BOT surgery, I did have two tonsillectomies (palatine and lingual), two sets of biopsies (BOT, nasopharynx, throat, etc) two laryngoscopies, a selective neck dissection and emergency surgery to stop bleeding.

The last surgery to stop the bleeding was Feb 18th. Between the surgeries, the chunks of flesh they took out for biopsies and the treatment, I'm still dealing with mouth and tongue pain 6 weeks out from the end of treatment. There's a "divot" of sorts on the back of my throat that hasn't totally healed yet and is a food trap of sorts.

I too have nerve issues from the neck dissection and that's been frustrating as exercise/therapy isn't making a difference right now. It may or may not improve.

All I can tell you Meli is be patient. There's no way to predict how our bodies react to the major invasion of cancer and treatment. I have pain meds and take them as needed (every 4-6 hours..sooner when it was really bad)to stay ahead of the pain. Rinsing with a baking soda/salt/glutamine solution 4-6 times a day helps with the mouth and tongue pain as well.

Positive thoughts and prayers

"T"