Hi Laurie,
I've just had the base of tongue tumour removed and a neck dissection and am writing to you from my hospital bed. Unfortunately I also had a bad bleed and ended up in critical care for 24hrs. It's been 8 days since the surgery and 6 since the bleed (which needed some further surgery) and it still hurts like heck - and that's being extremely polite. I think our surgeries must've been about the same time. I've been told this is quite normal. I can talk fine and eat/swallow but if I haven't recently had any medication the pain to eat is too great and I have to take more meds and wait for some more pain relief to take effect before I can continue eating.

Hope to be going home tomorrow providing I can get a good supply of pain meds.

I'll follow you and your progress and we can compare stories.


2013 - 39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+
28 May 13 - Pharangoscopy & tongue biopsy
29 May 13 - BOT Surgery & right ND (lvls 2-5)
31 May 13 - Hemorrhage, emergency trach, critical care
BOT clr mgns, 9/67 nodes & extracapsular extension
Finished 30 rads & chemo (cisplatin) stopped after 1 round due to hearing loss
May 2015 - left supraclavicular swollen lymph node & area - CT planned 9 May