|
| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Glad you have found this site to help get you thru the rough days.
Nutrition and dehydration are huge factors in how well a patient does. if they are not taking in enough calories and water it can lead to serious problems. Talk to the doctor immediately about this. Ask for a prescription for hydration beginning tomorrow. This is not something to fool around with. I cant stress the importance enough! I was hospitalized for malnutrition and dehydration a couple times and it was no fun, I felt so bad I actually thought I was dying.
Since they are at the end of treatment, ask for a nasal feeding tube. This can be done tomorrow and get your husband back on the right path. Even with the tube, he still needs to continue to keep swallowing sips of water several times per day to keep those swallowing muscles in good shape.
There are some difficult days ahead. I know this isnt easy! But he is almost finished. Radiation continues to work even after the patient finishes their treatments. Unfortunately this means he will still feel pretty lousy for a few more weeks. After about 3 weeks he will slowly begin to have some better days. It all goes back to how well he can do with nutrition and hydration. Every single day his intake needs to be a minimum of 2500 calories and 48 oz of water. That is the least he should be getting, more is even better.
I know being a caregiver isnt easy so please be sure to take some time to be kind to yourself too.
Best wishes with everything.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
Forums23 Topics18,266 Posts197,181 Members13,366 | Most Online1,788 Jan 23rd, 2025 | | | |
|