I looked at the calendar today. 6 months and 9 minutes (who's counting like me) ago today I took off that damn mask and got up off moving table for the last time. (Fingers crossed). So far so good. Both the RO and ENT say they don't see or feel anything.

Neck muscle are still and always sore. I strech them 5 or 6000 times a day. Side to side, front to back, twist left twist right. Then there is the mouth stretch thing. Anybody here do the Jim Carey call of the wild face multiple times a day.

I am sitting in high level meeting with execs from all over the world and I am contorting my neck and making strange faces. I can't imagine what they are thinking.

So I get dry mouth at night because my nose is stuffy. I find Afrin, it works great. I sleep the whole night. A week later I reed the back "Do not use for more than 3 consecutive days". WHAT IS THIS IT GOING TO GIVE ME CANCER???

New Issue TMJ Both sides. Hurts wih lateral pressure on jaw. Not so much talking and chewing but side pressure. I think I might have over done it with the Therabite.

Last Question. Survivor status does the clock starts Day of Dx or End of Treatment.

PS I could not Stand IPA's before Treatment. I will let you know the verdict after the weekend.


Hockey Dad
43, No smoke, Small BOT HPV+16
8/30/12 Biopsy found SCC in Lymph node (removed)
9/19 DX 4a T1N2aM0
10/1 TX 2x Cisplatin 35 IMRT 70 gry (Done 11/15)
PEG tube in 11/7. Out 1/4, Back at work 2/4/13
PET 2/13 Clear, 10/16 all Scopes Clear, 4/14 Chest X-ray Clear, 5/14 Abdominal ultrasound Clear, 8 yrs clean!!!