Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Chris,
The shock you mentioned in your blog could easily be something called Lhermitte's sign. It is common with platinum based chemo protocols. I still have it almost 10 years later but only when looking down while walking down stairs. You might want to get a home blood pressure device and monitor that sitting and standing. If it isn't blood pressure that made you faint you also might want to have a Doppler on your carotids. They tend to get damaged by radiation and it can be very bad if there is any restriction. Similarly your LDL cholesterol should stay below 100 for life. Any cholesterol plaque buildup in the carotid that is compromised by radiation can result in a stroke.
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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