 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Welcome to the neighborhood..."The Club Nobody Wants to Join". Membership may seem costly but it is good for life.
Keep pushing forward with PT it will help the neck. Find the regimen of neck exercises and do them every day forever and you will benefit. Likewise with all your tongue exercises. You can progress as fast as you and your docs agree with. Push but not too hard to get back to where you were or were you are comfortable. We had a weight lifter years back that was back in the gym within a few short weeks and we had a salesman that traveled extensively back on the road in 2 weeks. I was commuting 400 miles and was driving it in 2 weeks because of all the equipment I had to haul like a nebulizer, TPN pump for feeding, IV pole and pump for fluids, humidifier, etc.
My spit is still foamy after almost 10 years but that doesn't mean yours will be.
Congrats on completing treatment and wishing you clean scans and happy trailsL
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
