Really sorry to hear this Steve.
What sort of surgery have they done, or was it just a local excision?
I must agree with Christine. Please try and get a second opinion fom a CCC.
Can they do a Salvage type surgery? I know that this might be quite extensive but from our experience it is worth it.
Are they offering you any more chemo?
Tammy

Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!