Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jenny,
I am glad you are here but sorry you have to be. Encourage your dad to float around here for a while and see what others have done. We have all been scared and we have all felt maybe the future wasn't looking so bright. You just tell him, "Dad, someone told me there was a study on the news during the past year that said they looked at 50 lung cancer patients and their attitudes during treatment. The determination was that there was no significant difference on recovery because of a positive attitude but every one of them agreed it was sure a lot easier to have a great attitude."
It will get better but as mentioned, you need to get the pain and the continual sores under control. They could be mucositis or they could be thrush (a yeast infection). Both hurt and both need to be treated with mouthwash products and/or antifungal medicine like Diflucan. Also, the nausea is treatable and there are at least a dozen options. Continual vomitting will lead to severe dehydration that will make things worse, especially digestion. Get the pain and nausea under control. Go with him if you can and do not let the doctors release him until they fix those two so important problems.
The road ahead will get easier. Tell your dad we are all here for him and just make a list of the questions or problems he is having and we will adress them one at a time until he is satisfied. No topic is off limits and his recovery is of utmost concern for all of us!
God Bless!
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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