Hi Parkie, I'm sorry you have had to join us.
I agree with Christine, get yourself to a CCC . They see and treat the most patients each year and hence are very experienced. They should be able to answer your questions re Parkinson's disease and swallowing difficulties.
I have to say that I am with your Wife on this one. Not being treated is a certain death sentence. Even IF you do end up with swallowing problems, even IF you end up having to take all your nutrition via a PEG tube, life would still be good. Really , in the scheme of things this is a minor problem. Please rethink this issue.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!