Josee,

So sorry to hear the current status. I know you are down and have every right to feel somewhat defeated but do not give up. It is too early in the war. Just because this one dude throws his hands up and says "done - no cure" is NO reason to quite. This is one person's opinion.

Listen to Paul and the others who have had recurrences and all sorts of therapies that exceed "standard of care" guidelines, and that is what they are, not rulings from the Supreme Court.

Seek out other opinions until you find one that offers some alternative hope and options. Of course, QOL issues weigh the other side of the scale but at least you can then make a more informed decision as you have a wider range of paths forward.

Hang in there, this is only round one! You go girl!

oh - and NO just means to say thank you and make the call next on the list!

Last edited by donfoo; 04-09-2013 10:37 AM.

Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com