 "OCF Down Under" "Above & Beyond" Member (500+ posts)
Joined: May 2010 Posts: 638 | Hi
someone posted about this just the other day but called it by another name. Pseudotumor cerebri???
Of course I cant find the post now but I do remember they also had issues with hydrocephaly and a shunt. Maybe you could do a search on hydrocephaly and the person will pop up?
May you could get in touch with them directly?
Karen Love of Life to Alex T4N2M0 SCC Tonsil, BOT, R lymph nodes Dx March 2010 51yrs. Unresectable. HPV+ve Tx Chemo x 3+1 cycles(cisplatin,docetaxel,5FU)- complete May 31 Chemoradiation (IMRTx35 + weekly cisplatin) Finish Aug 27 Return to work 2 years on 3 years out Aug 27 2013 NED  Still underweight
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