Thanks everyone for the help, it's wonderful to be able to hear from people who have experienced all of this before. It's good to know we're not alone.

Tammy-I will talk to the rad team tomorrow, just to let them know our concerns

Christine-I will definitely ask the doctors about the neurontin, that's one he hasn't tried. Unfortunately, the fentanyl patch was a disaster. Jeff got confused, paranoid, dizzy, then after a couple of days he started hallucinating and vomiting. He's also had bad reactions to dilaudid, morphine, codeine and the anesthetic versed. The doctors say this is rare, but he had similar problems when he was burned.
Thanks all!


Laurie- CG to husband Jeff age 50: Stage III floor of mouth/BOT T3N1M0
Dx -1/18/13 Full dental extraction-1/24/13 1st PEG-1/30/13
2nd PEG-2/9/13 Tx start-2/13/13 weekly carboplatin/taxol and IMRT -
3rd PEG-2/15/13