OP Supporting Member (50+ posts) Joined: Feb 2013 Posts: 78 | I think I'll give it a shot once I check with my doctors and confirm they don't immediately reject it. Worst case I'm out $300, which in the grand scheme of cancer bills and expenses is nothing!
I realize this may seem like somewhat of a trivial post in the grand scheme of things. However, I feel that continuing to live your life normally and planing for the future, although it may be difficult or impossible at times, seems to help a bit with everything that has changed in my life over the past months. Its a bit of something to keep you focused on the future, that you will make it through the treatment and hopefully to the greener pastures of health.
I wouldn't be able to wear an OCF shirt (have to wear the race jersey and numbers), but maybe I could make some custom OCF bike shorts or some sort of logo to paste on the jersey below the race numbers. Maybe someone could get me some high resolution images/logos and I can see if I can find someone who makes custom printed bike shorts.
I'd love to spread awareness of this disease. I think I'd be somewhat of a shocking patient - not the normal at least!
Andrew age 25
early 10/12 - enlarged lymph node area 01/13 SCC of L tonsil, L BOT, 2 L lymph nodes stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT 4/13 TX finished 7/13 PET/CT - NED!
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