This is my first time posting after months lurking, so hello everyone! My husband David completed 7 weeks of Tomotherapy IMRT on 1/18 for advanced oral tongue cancer (SCC Stage III, T4N0M0). He had 5 weekly cisplatin treatments concurrently finished 12/24/12. NO surgery. HPV status unknown, he's 49 and stopped smoking at age 23, so 26 yrs nonsmoker.

Great news - PET scan yesterday and CT today are CLEAR! There's a long story about how he got to where he is today that I don't have time to share because we're getting ready to ride to the airport to head home. However, here's my question:

The onco and RO both think more chemotherapy would be a good idea to give David a better chance against recurrence. Right now he's only 6 wks post rads and his tongue, mouth and throat are red and there's still quite a bit of swelling, so the onco wants to wait a few more weeks until it subsides, the RO doesn't want him to wait too long, at most start in another 6wks. What kind, number of rounds and schedule TBD.

Has anyone ever heard of or underwent prophylactic chemo for head and neck cancer, after completing radiation or chemoradiation, particularly for tongue or BOT cancer? David got his treatment at CTCA in Zion, IL. We're from Virginia Beach, VA. We're willing to seek another opinion, as we came here for a second opnion.

I appreciate your feedback.

Melodie


Wife/caregiver to David, age 54
Dx SCC of tongue 9/28/12, stage T4aN1M0
Tx cisplatin weekly x5 beg 11/21/12 tomotherapy radiation x35 beg 11/29/12, end chemo 12/24/12, end rad. 1/18/13
3/1/13 PET and CT NED
Adjunctive carbotplatin + taxotere x3 June/July 2013
Dx recurrence 6/8/2017
Tx Keytruda July 2017 - Feb 2018
Total glossectomy w/thigh free flap + selective neck dissection 4/12/18
quit smoking 31 yrs ago