| Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF, Matt! From what you explained to me I would suggest starting out with an ENT who is familiar with treating oral cancer patients. Since the oral surgeon who checked you out was not concerned enough to do a biopsy and wanted to check it after he removed it, then you may want to seek out a doctor who is more proactive. The first step in diagnosing oral cancer is a biopsy, not taking the item of question out and then doing the biopsy. Think of it this way.... what if it is cancerous? Then you just had that tumor disturbed and will most probably need another surgery to make sure clean margins are obtained. Other surgeons wont want to get involved as you are someone elses patient. Surgeons will always suggest to have surgery, radiation doctors always want the patient to have rads, etc. Why put yourself thru all that?
In my opinion, another doctor may be a better choice due to the oral surgeon being dismissive of the situation. Nowadays oral cancer is being diagnosed in younger, healthier patients who dont fit the usual criteria. Oral cancer is not easily diagnosed visually, it needs a biopsy. It could be all kinds of things and I really hope it is not oral cancer.
Please do some thinking about your situation and make a choice you are comfortable with.
Good luck!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |