 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Steve, sorry you arent feeling better!
Hows your nutrition? Are you still pushing the calories and hydration? For at least the first year you will need to continue the minimum of 2500 calories daily and 48 oz of water. If you are getting that much every single day then try to boost it and take in extra for a few days and see if that makes a difference. I would suggest going for 3500 calories and 60 oz of water every day for 5 days and see if you feel any different. Even with taking in that much you probably wont gain an ounce as your body is struggling right now to rebuild itself so its burning up calories like crazy.
Thats just my suggestion. Maybe it will help. I know you want to be well so badly and its very frustrating not making more progress. Time will heal you and soon you will be feeling a little better. Recovery isnt like one day you wake up and you are well again, its a very slow go of it with small improvements along with set backs. Hope you feel better soon.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
