Like the man says, "expose your taste buds to everything you can". Food definitely tastes different since my first tongue surgery, even more so after radiation, but my memories are strong and fervent. Comfort food, to me, is my panacea; most of the time it doesn't really matter (to a degree) what I'm actually tasting-it's the knowing that it's one of my favorites (or used to be, anyway) that brings on the magic. I feel this whole journey is an 'evolvement' and taste is but a part. The not being able to open the mouth thing, though-I don't think I would ever have 'evolved' enough to make okay; I literally counted the days to when I had surgery to cut through my resected lips so I could open a bit wider. Hang in there!


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!