Is it SCC or another type, and did they say there was a primary? I would think it is what the primary cancer is, but with multiple organ or extensive cancer involvement, plus other features like nodal involvement, carotid involvement, extracapsular extension, pernineural invasion, Lymphovacular invasion, and others. SCC, If it's inside some organs, structure, like lymoh node, it's more contained, and usually follows a certain path. outside it can go anywhere. Mine went outside the lymph nodes, and dr called it free form or roaming cancer, plus I had PNI, and LVI, but haven't found any other terminology, other than being metastases. What have the Dr's suggested as treatment?


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs