Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | The very best thing you can do to help your husband is push the nutrition and hydration. Many hospitals offer hydration so if he isnt already getting it done, ask for it. By getting hydrated a few times per week, he will immediately feel a little better.
Nutrition plays a huge role in everything. Without getting enough intake he will feel awful. Every single day he needs a minimum of 2500 calories and 48 oz of water. More is even better, especially if he is losing weight. Then I would suggest pushing for 3500 calories daily. I know it sounds like way too much but its NOT! Fighting cancer is burning up calories like crazy and also at the same time his body is trying to rebuild itself too.
Boost makes a high calorie drink which has 560 calories per can. This can be added to his formula. If he doesnt already have a feeding pump, ask the doc for a prescirption. You can get one at a medical supply company. they will bring it out and teach you how to use it. This way while he sleeps you can have him take in another 1000ml which will help make a big dent in getting his daily minimums. With the pump running, he should sleep propped up on pillows. Plus you will want to flush the tube good after he is finished with the feeding. The pump can run while he sits watching tv during the day too.
Your husband must swallow water every day. He does not want to end up with even bigger issues down the road. His swallowing muscles can very quickly 'forget' how to swallow. For his own good he must do it even if it hurts. I know its not easy but he has to swallow every single day, even if its just small sips of water. Try to encourage him to do this at least 4 times a day.
This is when things begin to get very difficult. It will likely get worse before it gets better. The first 2 or 3 weeks after finishing are the worst of it all. The radiation continues to work even when its finished. After about 3 weeks post rads he will slowly begin to have a few good days and start to realize he is finally in recovery mode.
Hang in there and please keep posting. We will help you get thru this. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive |