 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Has anyone suggested hyperbaric oxygen treatments (HBO) for the osteoradionecrosis (ORN)? If not, I would suggest you inquire about it.
Did you have a tooth pulled prior to doing any HBO? There is something called the Marx Protocal which is 20 HBO dives prior to and 10 after any extractions. This is necessary for any oral cancer patient who has had radiation.
ORN will only get worse if it is not taken care of. An ENT who treats oral cancer patients should be monitoring your after care followup. They should be able to help you with the ORN.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
