 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Tess, Im sorry but I dont have knowledge about your health condition. The members here are oral cancer patients and caregivers which is what we have extensive experience with. Since we arent doctors or medical professionals we probably wont be much help to you with your problem.
All I understand about the trigeminal nerve is that it is one of the 5 major nerves in the face. Ive had excruciating pain from this after a surgery to remove half my lower jaw, so I understand how debilitating the pain can be.
If your current physicians are not helping you go to a top medical center which has the best doctors. That is your best chance to get this taken care of so you can return to a decent life.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
