Dale,

Welcome and glad you found us. I would not worry about the PEG tube getting wet. Some doctors like to stitch them in and you should wait until the stitches or toggles are gone but otherwise just keep it clean. After a bath or shower, there will be a lot of goo around it and you should clean it with a little peroxide and a qtip. It should be flushed daily.

I am surprised at your treatment schedule, too. Usually, the radiation is started at the beginning of chemo when both are used, especially with Cisplatin. Also, I am not sure how the doctors could determine the cancer is inactive.

I am hoping your doctors have significant experience with this type of cancer.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023