Hi,
I'm afraid I don't have any experience with what you are going through, but I did want to say I'm so sorry. I cannot even imagine. I do know there are folks that will come along that can tell you about their experience, so hang in there.
You have definitely found the right place to be. We are a great support group for each other.
Kathy


Kathy wife/caregiver to:
Kevin age:53
Dx 7/15/11
HPV16+ SCC Stage IV BOT/R
Non smoker, casual drinker
7/27/11 Cistplatin, taxotere,5FU 2/3week sessions, followed by IMRT 125cgy x 60 (2x daily) w/Erbitux weekly. Last rad 10/26/11. Last Erbitux 10/27/11
PEG placed 9/1/11 Removed 11/8/11
Clear PET 10/12 and 10/13 and ct in 6/14