I can read your frustrations, and agree with ChristineB, and was in a very similar situation, even while being treated in the nursing home with adequate daily peg feedings by staff, my kidneys almost shut down due to infection, dehydration and almost went on dialysis, creatinine was 6.5, but still had good output, color. My family called 911 due to my feelings, weakness, although resident dr there said I was ok, and wound up in the hospital for 21 days, lost abilty to walk again for the 2nd time, and doctors in hospital again thought they were going to loose me. I have chronic kidney disease now, partly due to this, and creatinine is still high, but leveled off to a steady 2.4. Lack of nutrition and or Dehydration is serious business, and can be deadly.

Completing full treatment without interruption should be taken seriously as trying to cure this disease, not as prevention, and an unknown primary sometimes has a lesser prognosis than other primary cancers, but HPV helps increase the odds, but still can be deadly. The RO is correct that missing radiation each day amounts to 1 percent for each day, and this is due to the cancer having a chance to repopulate. Actually, the effectiveness of radiation decreases after the first 2-3 weeks, so they use different boosts, fractions, and other techniques to help this, so not missing any more is encouraged.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs