So V had his follow up PET today, 3 1/2 months post tx, and the results have the rad onc, med onc & ENT scratching their heads. Original BOT site, plus many nodes, all completely clear, no sign of anything, good news.

Bad news, the nodes in his chest and upper abdomen lit up like a christmas tree, very hot, SUV 19. With the original areas being resolved, they are not thinking distant mets. Could be second cancer. Could be sarcoidosis. All concerned enough that they tried to get a biopsy done today, but no anestesia available. Will be early next week.

I am well aware of the 40% false positive on post tx PET's, but isn't that usualy in regards to original tx area? Anyone seen anything like this before?

wife/caregiver to Vince, dx 4/12 Stage IV BOT HPV+ SCC, poorly diff.; T4N2cMo; U of C; Clinical trial, Everolimus; 6 wks ind. chemo (Cetuximab, Cisplatin & Taxol), 50 x IMRT, 75 gy chemorad w/5FU, Hydrea & Taxol; 5 years out, thankfully still NED