 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Have your TSH levels checked asap and record that number in case your thyroid craps out like many of us due to the radiation. Your "normal" TSH level is what you need to get back to if that happens.
Did they get you fluoride trays? If not, get them.
Don't use that feeding tube unless critically necessary. Keep swallowing often throughout every day to lessen the chance of becomming dependent on the tube post Tx.
Consume appx 3000 cals and 48 ozs of water each and every day from now thru at least your 1st year post Tx.
Good luck and we'll be with you as much and as long as you want!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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