There are several (including myself) who have had rx more than once, and I hope they chime in as well. I had radiation twice 2nd time using IMRT tx which is very precise, I don't think there were any crossover areas for me. I know I was never warned about potential consequences the way you have been. Try looking at it this way - there is a 95% chance that you will not have any life threatening side effects, and an 80% chance that you will not have major side effects.

While I believe the 95% figure, I think the odds of serious side effects are more like 50%. I have had continued ongoing fatigue since the 2nd radiation. I deal with it. Some days it is debilitating, some days not. Swallowing continues to get more difficult as time goes on but I have yet to lose any weight - so all good there. Strengthen your throat muscles as much as possible with eating and swallowing exercises. The mucus will probably get worse too - buy a water pik which cleans your mouth out and you feel fresh as new. things like mouth sores will clear up in time - but the odds of you getting mouth sores will always be higher.

So yes, there are many ongoing radiation side effects that you can reasonably expect. But, I am here, and I am prepared to put up with them. These are my "new normal", and I am glad you are looking for a realistic view of the future.

I don't think your physicians would undertake this round of radiation if they believed that the life threatening side effects were any more than 5% so be confident in that.

There are several of us who have had radiation more than once, so I'm sure you will hear from them as well.

Hugs

Donna


Donna,69, SCC L Tongue T2N1MO Stg IV 4/04 w/partial gloss;32 radtx; T2N2M0 Stg IV; R tongue-2nd partial gloss w/graft 10/07; 30 radtx/2 cispl 2/08. 3rd Oral Cancer surgery 1/22 - Stage 1. 2022 surgery eliminated swallowing and bottom left jaw. Now a “Tubie for Life”.no food envy - Thank God! Surviving isn't easy!!!! .Proudly Canadian - YES, UNIVERSAL HEALTH CARE IS WONDERFUL! (Not perfect but definitely WONDERFUL)