OP  Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 5,260 | It sure is a day to day struggle as you know. I wonder how long I can keep up this struggle of being in a bind and on a schedule every day of our lives. Can't go anywhere that takes more than 3 hrs because of the meds and feeding schedule. Live with 24/7 pain that would put most people on their knees. You gotta have it in your mind that one day you will be fine. If it was just OC I would be in great shape physically as well a mentally. Just too many other problems to put up with.
Last edited by ChristineB; 10-18-2012 09:55 AM. Reason: This was taken from another post Jim made. I thought it should have its own thread.
Since posting this. UPMC, Pittsburgh, Oct 2011 until Jan. I averaged about 2 to 3 surgeries a week there. w Can't have jaw made as bone is deteroriating steaily that is left in jaw. Mersa is to blame. Feeding tube . Had trach for 4mos. Got it out April.
--- Passed away 5/14/14, will be greatly missed by everyone here
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