The 5th Annual OC Awareness Walk in Lehigh Valley/Bethlehem, PA is tentatively scheduled for Saturday, 9/28/2013. Please mark your calendar if you live in PA, New Jersey, etc. � we would love to see you there!

As Christine stated, �If you live within driving distance PLEASE consider taking a few hours out of your busy life to attend a walk. Meeting other survivors is a memorable experience, its like you are meeting old friends. You cant imagine what a great feeling it is to be among other survivors and caregivers. We all bond instantly since we all 'get it'.� There is such a bond between survivors that we had a few that drove over 2 hours each way to attend this years walk.

The Lehigh Valley walk is organized by local OC survivors and their friends and family. We have since form our own informal support group and welcome others to help with the walk. Some members of our planning committee are long term survivors -- 10+ years. We have two 14 year survivors and our "senior" member is an 18 year survivor and all are doing wonderful! It has been an awesome experience working with this group. When we had our first walk in 2009, I was only a 4 year survivor, so working with this great group of long-term survivors really gave me hope and the mental boost I needed.

So if you want to help, please let me know.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2025 (ORN of lower jaw)