Hi Ed,

Boy, do I feel for you! I went through nearly a year of almost everything tasting horrible. People would say, "Oh, you mean food has no flavor." No, it tasted BAD! I subsisted mostly on Boost, Carnation Instant Breakfast, and Ensure with other stuff added. My husband just keept adding things until I got enough calories to stop the weight loss. He started with a base of crushed ice in the blender and added the boost or equivalent, then added a couple of the small 3.5 oz. cups of Haagen Dazs ice cream, a 1.5 oz. Benecalorie supplement, protein powder, as well as occasional Belgian chocolate truffles, peanut butter, bananas, etc. The trick for me was to add as many calories as possible into the basic supplement. I'm sure there are many who disagree but my transplant doc, my oncologist, and my gastroenterologist all concurred that it was more important to get sufficient calories than to strive for good nutrition during that period. They told me to eat anything and everything that I could no matter what it was. It worked for me. I hope this helps! (I guess I should add that I had lots of weight to spare but the docs still didn't want me losing.)


mausmarrow.com
Age 59 ex-smoker 1989
1/10 dx MDS (blood cancer)
2010-11 21 cycles Vidaza
11/10 Bone Marrow Transplant
8/31/12 dx SCC left BOT HPV 16+ T1N2cM0
10/11/12 TORS partial glossectomy clear margins
10/24/12 bilateral ND/ii-iv 92 nodes all clear
10/30/12 dx revised T1N0M0 no chemo or rads