David & Christine,

Thanks very much for the info about the dry mouth and weight. I feel a whole lot better knowing how long it will take for things to get back to normal.

In my case, the funny part is that during the day, I don't have a dry mouth. I actually have too much saliva, although it is thicker then before, of course. The baking soda rinse will take care of the thickness. I actually have to carry a plastic disposable cup with me when I go out to spit into. I guess I could swallow the excess but for some reason, and it is probably psychological, or because of the thickness of the saliva, I don't. So you see, everyone is different.

My dry mouth only happens at night when I sleep lying down. I found that if I sleep sitting up, the mouth stays moist. I don't understand why. So I guess I will continue to do that until the dryness improves.

I am still on the G-tube with pureed food and meal replacement. The throat only stopped hurting severely 1-1/2 weeks ago so I want to wait until 4 weeks post Tx before feeding through the mouth. It would be the first time since the surgery. After the surgery I had a couple of episodes of infection in the mouth so I was told not to feed through the mouth. I think it should be fine to feed 4 weeks post Rx, which will be 10 days from now.

If it takes a year to regain the weight, that makes me feel more relieved. I have actually gained a couple of pounds post Tx. I am sticking to all natural and organic food as much as possible and only on fish, vegetables and grains. I just started to introduce organic chicken breast a couple of days ago, I think that's when I started gaining.

Joseph


Joseph 59 male
pain in tongue strt 2/10/12, Dx SCC 3/19/12, confirmed Stg IV 4/5/12,
Total Glsctmy & recon w/ flap from L thigh, neck disct, trach 4/27/12
G-Tube 5/1/12
55 nodes all clear
completed 2 chemo 33 rad
non-smoker, non-drinker, exercise daily, mostly vegetarian diet...go figure