Hi, I just joined today and I need your collective brains to pick. I am a tongue cancer survivor and am so happy and blessed. I was diagnosed in 2009 and ready to face the world by 2010. Didn't need surgery, had chemo and 8 weeks of radiation. I have as much saliva as I will ever have. The big problem is eating. Not so much the swallow but the landing in my stomach. I have terrible burn, pain under my right breast, pain directly behind that in my back like I've been impaled straight through. I have terrible gas and bloating. I am taking Dexilant and Prilosec. Was on protonix but this is supposed to be easier on the esophagus. Nothing works. Feels like each bite gets all balled up in the middle of chest and grows to a size that is too big to go down. I sit up straighter to move the food but it doesn't help. Eating takes me hours and I get tired of cold food. I get the burn with anything I put in my stomach even plain water. I keep losing weight because I suffer painfully through every meal. Had a normal endoscopy, normal gall bladder test, all signs lead to no indication of any problem anywhere. Except I keep a bag handy at all times for dry heaves and constant pain. I would call it discomfort, but that is a good day. Most days it's just pain.
Sorry for the length of my whining, I just have no answers and pretty soon my only solution will be to stop eating. It's getting worse.
Anyone feel like I do, especially after so long since treatment?? Am I losing my mind?