| Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jay,
Welcome! Just remember, it aint cancer until they can prove it through a biopsy. I know it is easier to say this than to live it. Every little thing in my neck or throat worrys the heck out of me, too. Seek out the answers.
I used to spend a bit of time in Louisville around Butchertown when we bought the old Armor Pork Plant. I really loved staying at the Gault House (the old section).
I am also a green tea connoisseur. My father is a pharmacist and his organic chemistry professor wrote a book about green tea that was very informative. I have found the absolute best Japanese green tea in the world. As a matter of fact, I order it here in the US and ship it to relatives in Japan. They live about 200 miles from where it is grown and can not buy it there. My uncles tell me I am very famous in Japan because I have brought the best tea. What a hoot!
Wishing you the best on your discovery mission!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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