 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Mickey....PLEASE do NOT listen to the well meaning friends who are saying they wouldnt do all of their treatments. That could make the difference between life and death. The loss of taste is temporary, it will return slowly over time. The saliva shortage is also temporary for most of us. There is medication called pilocarpine which will help you to produce more saliva. Beware of googling info. You really have found the very best place for correct up to date medical info about everything to do with oral cancer and its side effects. Check out the Health on the Net Code (HON) which certified OCF. Not just any website can have the bragging rights to be HON registered.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
