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#15378 05-07-2004 09:29 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Eric, I moved your post over here so people could welcome you officially!
Ed --------------------------- Eric Dabrowski Member Member # 1285
posted May 07, 2004 02:31 PM -------------------------------------------------------------------------------- I'll jump right in. I,ve been Diagnosed w/ oropharyngeal cancer w/ neck mass. I was diagnosed 3/15/04 was told I would have operation. on 4/7, then 4/21, then 4/4 now back to 4/21. I'm with V.A. I was told they needed to put more survere cases before me. I don't know if that is good or bad. They say it's not spreading that fast but what do I know? Listening to your concern about speach problems after surgery and radiation is my concern too. I am a therapist by trade and need to talk to make living. Since I have two more weeks before my surgery I am looking at every thing under the sun to reduce my tumor or heal it. I have been in trying verious alturnative approaches and would like to explore this more with you all. My heart is with you. I hear your struggles are my'in, too. This is very grounding to be able to hear all your experiences. Wish you my best. -------------------------------------------------------------------------------- Posts: 2 | From: Laguna Hills, Ca. | Registered: Apr 2004 | IP: Logged
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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