I keep getting infections and they aren't going away totally with antibiotics. I am allergic to lots of antibiotics and have limited treatment options. Also, the infections are causing lots of pain where my surgery was and a couple of my lymph nodes are fluctuating in size. I had a SND and the last 2 scans, the neuroradiologists get concerned due to the growing size of this one particular node, even though it doesn't meet the size criteria for suspected malignancy, just that there has been a CHANGE from previous scans. In order to rule out malignancy, they would have to keep doing biopsies, not to mention that these changes have been stressing me out and the infections are very painful.


37 y/o fem at Dx (23 wks preg @ dx on 3/16/11)
SCC L oral tongue (no risk factors)
L partial gloss/MND 3/28/11 @ 25 wks preg
T1-2N0M0; no rads/chemo
Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-)
Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx.
Various scans since rx ended are NED!
Part of genetic study for rare cancers @ MGH.
44 years old now...I wasn't sure I would make it! Hoping for 40 more!