 Patient Advocate (old timer, 2000 posts)
Joined: Nov 2006 Posts: 2,671 | Oh My Goodness, Charm! How awesome that you figured out what to do and were able to get relief! Hope you have gotten some needed rest. I just wonder if anyone in the emergency room would have known what to do even if you had gone there. What you and Christine have posted really should be included as valuable instructions for anyone using a PEG. Or maybe demonstrated on a youtube video? (Simulated, of course - I would not like to see anyone in such discomfort in an actual situation).
Anne-Marie
CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
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